International Summer School on RD Registries and FAIRification of Data

23–27 September 2019,Istituto Superiore di Sanità, Rome, Italy


Registration is possible for:

- the entire course (“Rare Disease Registries” and “FAIRification of data”, September 23-27, 2019).

- the first training module (“Rare Disease Registries”, September 23-25, 2019)

the second training module (“FAIRification of Data”, September 26-27, 2019)


An e-mail will be sent, by July 1, 2019, to the selected participants for the course and the selected attendees for the travel fellowships.

Respondents who are not contacted by email should consider themselves not selected but will be kept on a waiting list  until July 30.