Registration "Rare disease perspectives in Central - Eastern Europe"

The conference “Rare disease perspectives in Central – Eastern Europe”, will take place on September 16, 2019 in Gdansk, Poland.


Please complete all information to register to the conference before September 9th, 2019.


This survey form is specifically dedicated to collect information for the purpose of the European Joint Programme on Rare Diseases, EJP RD. We collect Personal Data freely provided by the user including (but not limited to): name, email address, and any other details specifically asked in registration forms.

EJP RD does not share personally identifiable information with unrelated Third Parties. However, we may disclose, transfer or share your Personal Data - anonymized or in its original format- with certain third parties without further notice to you, only for the purpose of the organization and follow up of this event.

Information collected on this form will be held in compliance with the General Data Protection Regulation (EU Regulation 2016/679) (GDPR) of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data.